Meet some of our Unbreakable Fighters
Hello my name is Lisa and I am grandma to Bentley Wichert. He is five years old and has osteogenesis imperfecta type 3/4. OI is a genetic disease which affects his collagen causing his bones to be brittle and fracture very easily. OI also affects his teeth causing them to break off. So once all of his baby teeth came in he needed to have them capped. We traveled all the way to Georgia to see a pediatric dentist that specializes in capping very small teeth and works with a lot of kids with OI. Unfortunately our insurance covered the hospital portion but did not cover the dentist bill. That meant we had to take out a medical loan through care credit so that Bentley could have the procedure done. We were able to get a loan with deferred interest if paid by February 27th. We were struggling to pay off the remainder balance by the due date. Then our prayers were answered. Kadie Nowak and her partner have a nonprofit called The Unbreakable Fighters Kadie reached out to my daughter and said that her nonprofit wanted to pay off the dental bill for Bentley. I was blown away by their generosity and it brought me to tears. These two women are the most caring generous understanding women I have ever met. Their act of kindness has relieved such a burden for my family and I will never be able to thank them enough. - Lisa
Ryker is 6.5 years old and was born with a rare disease called Osteogenesis Imperfecta aka Brittle Bone Disease. This bone disease affects the collagen in your genetic makeup, so no amount of milk/calcium will fix it. Ryker also has a rare severe recessive form of O.I. listed as Type 8. He was born with over 18 counted for in uterine fractures. During birth his neck and left tibia were fractured. Since then Ryker has broken over 100 times, resulting in many physical set backs and progressive bowing. Ryker can't roll over, walk, crawl or stand. O.I. has also affected his muscles, severely. Ryker receives several therapies a week to build endurance and strength. We travel anywhere from 45-100 miles a day for these appointments. Every 8 weeks, Ryker receives an IV infusions of a bisphosphonate called Pamidronate. Bisphosphonates help strengthen the bone and reduce bone pain. These infusions make an 8 hour day at the hospital but now I do them myself at home after being trained in Omaha, Ne. Ryker has had 8 surgeries in 4 years. Five of them being rodding surgeries where he has rods placed inside the bone to provide internal strength.
Meet Noah and Milam Kiser. They are two amazing kids that God saw fit to bless one another with. They are siblings who share an unbreakable bond. They both have Osteogenesis Imperfecta type 3. They have had hundreds of fractures between them, but they never let this disorder define them. We have learned so much along this journey. The best advice I can ever offer is this is a beautiful life, so get out and live it.
Harlan is 5 years old and was born with a rare disease, Osteogenesis Imperfecta. He was diagnosed just after birth as Type III. While in the NICU Harlan suffered from 3 fractures. His left femur, left humerus, and shoulder. Harlan started treatment for his O.I. at 8 weeks of age. He receives Pamidronate, which is a bisphosphonate through IV. His treatment is given at Children’s Hospital and takes around 8 hours to administer and follow-up. Pamidronate help strengthen Harlan’s bones and reduce his bone pain. Harlan has telescoping rods in each femur that help to strengthen the bone and help to prevent severe fractures. Harlan has responded remarkably well to his treatment and surgery. He runs, jumps and climbs; many things that the doctors said he would never accomplish. Harlan is an amazing boy with a tremendous personality.